Galileo Steps For Wizard Recovery
It's A Real Lifestyle - Enriched With Magical Colors
First Step
Go out.
Leave the research, the answers, the search for relief for a walk in the open air, even a 5 minutes one. No phones, no google.
Revered Sphinx,
You are researching this condition inside and out. You can write a short peer review article on your condition, soft symptoms, hard symptoms, likely progressing, unlikely progression, alternative diagnoses and who discovered the condition. This is your strategy for this condition, comprehensive understanding so you can know everything your doctor is talking about. One problem, your new job is not to understand your doctor, it is to make your doctor understand you.
Your doctor has been trained to solve medical problems in the short term and accompany a recovery over time, managing a chronic condition for a lifetime is not in their wheelhouse. It is up to you to switch them from trying to solve you to managing your indefinite care. In addition, due to the changes a chronic condition causes to the underlying systems of the body, many symptoms you will feel will be idiosyncratic, hard to define and easily dismissed. It is up to you to get your doctors to listen to your observation and not allow them to steamroll you.
A chronic condition is not an observer’s sport, it a daily fight to make people understand your unique condition. You doctor, your family, your friends, your coworkers. Your research will empower you in this fight, it will give you the confidence to stand up and say, “I’m right, you’re wrong, and we’ll do it the way I research to be the right one.” But it’s up to you to find the power to open your mouth, here, among Galileo members that will help you find your voice.
“It takes two to speak the truth: one to speak, and another to hear.” - Henry David Thoreau